Shane Burcaw is diagnosed with spinal muscular atrophy and has dated Hannah for three years. Many people mistake Hannah as his nurse. Shane wants others to know that he is deserving of love and in a relationship that is both emotionally and physically intimate.
Shane and Hannah’s YouTube Channel:
our relationship is normal and exciting and she helps me pick the otherwise we're just a regular couple that has fun and gets into arguments and you know figures out like I thought first Shane is definitely both physical and emotional I love his personality he's a wonderful boyfriend and we definitely connect physically I love his body and everything about him really why are you laughing that's making it so much harder you told me to say that no don't laugh like that did you like pushing your buttons uh yeah definitely in a loving way I think it's funny he definitely teases me the she's a play Internet and it's a little definite maybe in many ways it's not welcome to SBS K join me as I travel around the world an interview individuals living with a condition to prove no matter how you communicate but what obstacles you face you're always deserving of love and acceptance so without hesitation let's meet today's friend well let's just jump into the most important question what's your biggest pet peeve about shape this is an easy one Shane has a habit of asking me for a sip like from a cup and then as I bring it to his mouth he starts talking and just begins a conversation so then I'm stuck holding a cup waiting for him to finish and it's always a long sentence Hobie like do you remember the time I'm not sure what it was nice long sentence yeah I live in this used for this final muscular atrophy take you and that causes my muscles to race the way as we get older and it was my primary caregiver and so from the moment I wake up to the moment I did that and is doing most of my hair it affects every part of my body I never walked I got my first real chair when I was 20 years old and today it affects my arms like now my lungs everybody I had absolutely zero familiarity with anything disability really did when I met him and then like the first date we were on someone came up to the table and started praying over him and I was like oh like what do I do and he was like oh don't worry this happens all the time so I was shocked and that is true it really does happen all the time so that I definitely opened my eyes to the entire world that I was completely unaware of how much nice and good oh this must be your sister or your mom or your nurse I can't believe the mom thing I've gotten that like five times and he's four years older than me I have too much I know they are just confounded by the idea that even be together and that hurts you know that it was hurtful this is if they knew me they would know that I am a funny intelligent caring guy that obviously was I used to hate my body like to the point where I would leave all my clothes on at the beach like a family vacation because I knew I didn't like the way the people looked at me and I knew from the roll-ups of the respect I was weird I had already by the age of like step 7 experience the weight of the world assumed so much about me because of the way I what they were on a romantic walk through the park by a lake near our house a couple of weeks ago I thought that we clearly looked like a couple a father with a group of kids runs up to me and is like does he want to play with bubbles and I was like excuse me and the guy was like just he want to play with bubbles I'm Shane was like no thank you that kind of assumption is made all the time that I'm not capable of interacting or conceal from herself for love for my physical what's developed in time a lot of active I Hannah just like loving me entirely is caregiving something this is part of your life or is it something you consider an act of love I think it's just part of my life yeah I don't really consider it like a special thing that I do for Shane it's just sort of a normal part of our daily lives now that we don't even think about yeah don't look at the charitable aspect as like a chore but rather just something that were hanging out and doing the other do you know yeah I mean I think we sort of combine the caregiving and the boyfriend/girlfriend yeah parts like I don't see it as like now I'm gonna be your caregiver and now I'm gonna be your girlfriend oh you shower yeah I want to talk to him so I think we just see it as hanging out and yeah I think we just sort of maintain the boyfriend-girlfriend rules all the time I really wish to the world was a little more open-minded about disability and the fact that we are all you know valuable and how did you two meet I saw a video about Shane on YouTube was just like about his daily life and I watched it and then I clipped a link to his blog and I read that for like three hours and by then it was midnight and I was a little bit delusional so I emailed him and introduced myself I was delusional this isn't a normal new sound and I don't know why I did it but I emailed him and introduced myself and he emailed back the next morning with his phone number tell me how you ended your first no I don't want to say how I ended my cou was that she wrote this nice you know very professional yeah we had a lot in common you made me laugh ha ha yes I think you see you what compelled you to send that first email first his sense of humor um I watched throughout the entire video he was very charming and cute what did you think the first time you saw Hannah well I didn't see her just nervous and I did that is input I read her email and I fell for her mind and her character and her personality it was a wonderful email she's really good about AHA thought I was just like wow I need to know more about this hell and then the first time that I saw her face I was like oh he is a very selfless person and I discovered that a couple weeks after he met when he was just constantly like dropping things to FaceTime me when I had a minute that was free and just making sure that I was like emotionally taken care of all the time you're doing amazing my hands are like icicles sweating icicles do you comfort her often do that comfort her off there yes there is yeah okay yeah I think that a big part of our relationship is just like talking about and being there for each other through hard most of the time you do it right away the other night I was well you're in a hotel last night I was scared that there was a murderer in the room because it was just a really creepy room there were a lot of things that led me to baby noises yeah anyway I was gonna investigate the bathroom so that I could be sure that the room is empty and Shane thinking that this was a moment for humour started making like a scary monster voice from the other room and that was exactly not what I needed in that moment yeah I don't like that so most of the time you come for me some of the time you yes have fun this is the mark yeah life is better when you're laughing and that idea has allowed me to do everything that I've done in life just being able to take a step back and laugh at my situation everyone yelling here um has turned me into the person that I am today and has led to my relationship my career every time what was it like the first week you lived together just a happy man yeah oh you're like definitely out there and just enjoying that feeling of knowing that this wasn't a visit that was hard to end it was a really comforting and relaxed you know what would you say to a young person who does not believe they're worthy of love you are worthy of love you might not feel like it and feelings that you see out there in the world and that what you get from other people right now might not make you believe that but you are and you have unknown abilities and interests and values inside of you that other people will find very attractive thanks for watching SP SK we believe the world is a better place when everyone takes the time to understand one another if you want to be part of the community of people who believe that click the big yellow SBS K button to subscribe thank you and see you next time